Spotlight: Understanding NF2

by Vanessa Shealy  Understanding NF2 is a new short comic book based on the life of Billy Nguyen, who was diagnosed with neurofibromatosis type 2, or NF2, at the age of six. NF2 is a rare disease characterized by the development of benign tumors on the hearing nerves. The story tracks Billy’s childhood struggle to understand his diagnosis and navigate this difficult disorder. His Vietnamese parents spoke some English, but all the medical terms were too overwhelming, leaving young Billy to make a lot of adult decisions on his own. I work as the Director of Communications at the Children’s Tumor Foundation, and much of … Continue reading Spotlight: Understanding NF2