by Liz Argall Summary Maria Sweeney is an artist. She has good friends, a rare genetic disorder, severe chronic pain, and is an ambulatory wheelchair user. In an era of increased (invisible) disability awareness “thanks” to long Covid, Sweeney’s book is a timely examination of what it means to live with a chronic disability, navigating medical bureaucracy, a multitude of micro aggressions from often well-intentioned people as well as experiencing the joys of supportive friendships, love, and the power of micro-affirmations. Pain, especially chronic pain, can disrupt a person’s sense of time. This lyrical work explores the past, present… Read More
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